I hope you never lose your sense of wonder, you get your fill to eat but always keep that hunger.
-M. Sanders and T. Sillers
My Dearest Girl,
I hope you never have to call my doctor and ask him to reevaluate his diagnosis.
I hope you never bake with me and I no longer remember my own recipes.
I hope you never take me shopping and see me burst into tears realizing I’m incapable of making a decision.
I hope you never see my handwriting deteriorate until I can no longer put pen to paper.
I hope you never experience becoming a mother amidst losing your own.
I hope you never watch your child become scared and confused while I shout, uncontrollably.
I hope you never have to hear of your friends’ parents babysitting their children while I sit in a nursing home, unable to walk.
I hope you never have to hear me lose my words; never ache to hear my voice.
I hope you never spend your days obsessively reading about the life expectancy for a person with early onset Alzheimer’s.
I hope you never listen to my screams of sorrow.
I hope you never know the heartbreak of me looking through you, no longer knowing who you are.
I hope you never see me lose my light.
I hope you never hear that I have stopped eating, preparing myself for the inevitable.
I hope you are never afraid to go to sleep, petrified that I will die while you rest.
And I hope your own child never has to read these words that I write to you now.
But, most of all, my dear Remington, I hope you forgive me for bringing this devastating disease into your life.
With an immeasurable amount of love and grief,
Mama
Written from the heart with love!
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Amy, much love to you and your family. I’m in this spot too and it’s devastating. I appreciate you breaking the stigma and actually talking about your struggle among your mom’s deterioration. I read your blog as you know how to express the struggle in a way I’ve never seen before. It’s real and heartfelt.
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